Tuesday-Newsday #79

It’s time for Tuesday-Newsday! The pain conditions spotlighted this week are Fibromyalgia/Chronic Fatigue Syndrome and Lyme Disease. The featured blog post is “Pain: An Invisible Condition” from the PainSupportUK newsletter by Jan Sadler. 

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*PAIN Rx

DRUG ALERT: FDA issues new warning against Reumofan Plus and Reumofan Plus Premium

FDA approves new extended-release Exalgo (hydromorphone HCI) for moderate-to-severe chronic pain 

High-Tech Patient Tracking: Smart Innovation or Invasion of Privacy?

Some Kentucky doctors say a new state law targeting abuse is so excessive and confusing, they've decided to pack up their prescription pads (article & video)

Understanding Urine Drug Testing (UDT) in Pain Care: Clinical Complexities and Medical Mandates 

*CHRONIC PAIN NEWS 

Study Finds Meditation May Help Fight Loneliness, Inflammation, and Stress

Smoking Cigarettes a Poor Coping Strategy For Chronic Pain

The Chronic Pain Eliminator (article & video)

This external stimulator stops the pain message from getting to the brain. It requires no surgery to install and it can work almost instaneously for the 80 to 90% of patients who benefit from it. See more info: *Doctor’s Interview  *Research Summary

Living with Pain: The Pain Ninja

*FIBROMYALGIA and CHRONIC FATIGUE SYNDROME (CFS)

Studies Seeking Patients with Fibro/CFS:

~~San Francisco bay area Ampligen trial seeking Chronic Fatigue Syndrome patients

(Why Ampligen? Previous Study Sparks Hopes for FDA Approval of First Drug for CFS)

~~Indiana University Fibromyalgia Study Seeks Participants

~~ME/CFS & Fibromyalgia Patient Health-Needs Survey

~~P.A.N.D.O.R.A. survey

If you have fibromyalgia, ME/CFS  or chronic Lyme disease, please click to fill out this survey. The information will be used to determine the need for and financial viability of creating a center of excellence for NeureEndocrineImmune diseases.

American Chronic Pain Association commissioned research to examine the Public Perceptions and Private Realities associated with fibromyalgia

Qigong Eases Fibromyalgia Pain

Fibromyalgia and hysterectomy: the impact on health status and health care costs

Fibromyalgia patients' Carpal Tunnel Syndrome incidence 7 times normal, study finds

Multidisciplinary approach cuts symptoms of fibromyalgia

Topical capsaicin helps severe fibromyalgia pain; depletes pain-signaling substance P in local nerve endings

Resources Especially for Men with Fibromyalgia

This site offers uniquely male perspectives in forums, chat, news, personals, and more.

Children with Fibromyalgia Benefit from Cognitive Behavioral Therapy (CBT)

Fibromyalgia & Chronic Pain LIFE Magazine 

The current issue features articles such as Parenting with Chronic Illness, Fluoroquinolone antibiotics toxicity side effects, and Rheumatologists or Neurologists - who should treat fibro? 

Prof. Ruggiero's Virus-Fighting Probiotic Studies (video)

CFS Patient Advocate blogger Chris Cairns explains the research being done on the probiotic GC-MAF 314 as a therapy for ME/CFS by Prof. Marco Ruggiero and Dr. Paul Cheney, as well as work that Dr. Derek Enlander is doing on a similar probiotic (MAF878). 

Social Security Ruling on Evaluation of Fibromyalgia for Disability

The Social Security Administration has issued a ruling on how they establish that a person has a medically determinable impairment (MDI) of fibromyalgia. This ruling went into effect on July 25, 2012. Click headline to see details.

*LYME DISEASE

Lyme disease becomes political battleground

Avoiding Inappropriate Serologic Testing

Lyme Arthritis: Highly Treatable, Slow to Resolve

Boston Lyme Patient Wins Disability Claim

Faces of Lyme

This video shows patients diagnosed with advanced cases of Lyme disease. They share their symptoms, search for a diagnosis, and hopes for treatment. 

*FEATURED BLOG POST

Pain: An Invisible Condition 

by Jan Sadler of PainSupport