dahlia in my garden: Rio Fuego in Coleus leaves

Tuesday, September 6, 2011

Tuesday-Newsday #28



Sorry for the late post, but the long weekend slowed down my news sources. Let’s get right into it... our subjects this week are Pain Awareness Month, Chronic Pain News, Pain Rx, Sjogren’s Syndrome, and Osteoporosis. The final category is Chronic Pain & Relationships and the article is entitled, My Partner was Just Diagnosed with a Chronic Illness ... Now What?

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below.

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, meds, etc., in anything I post nor can I guarantee that they are all effective, especially not for everyone. I always include the citation, source, or website so you know where it came from. As is the case with any health info, ALWAYS get your doctor's opinion first!
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*SEPTEMBER IS PAIN AWARENESS MONTH
Visit the American Pain Foundation website to learn how you can help raise awareness on the issue of chronic pain in the world. Together we CAN make a difference!
1)  Attend the APF Facebook campaign event HERE
2) Add your Voice! Upload your video, photo or written response describing what YOU could do ‘If you lived in a world with less pain’ to the event page. Watch the video about it HERE
3)  Spread the word! Find out how by scrolling down the Awareness page to step three HERE



*CHRONIC PAIN NEWS


The search for a killer: Millions of people live with chronic pain. Could a new range of analgesics offer hope at last?

(Note from Shannon: I do aqua running/fitness and it helps me tremendously. My physical therapist says it's great for many chronic conditions, so consult your doctor to see if it's right for you. I couldn't live without it!)
*PAIN Rx


*OSTEOPOROSIS
*SJOGREN'S SYNDROME
*CHRONIC PAIN & RELATIONSHIPS

Saturday, September 3, 2011

Absorb Your Environment

When visiting a nursery in the Spring, I noticed a type of plant I had never worked with before – Tillandsia, more commonly known as ‘Air Plant’. They were very unusual looking to my eye and I loved their colorful blooms. Some were bright pink and purple, others vivid orange and yellow, and some were in shades of blue. I couldn’t resist buying a couple to experiment with in my garden.

In the following months I focused entirely on my regular crop of plants: dahlias, tomatoes, squash, carnivorous plants, coleus, etc. and left the little air plants waiting for my attention. At last, this past weekend, I decided it was time to create a tableau to feature their unique beauty. I didn’t know much about air plants, so I read up on them and it made me think about … us!

Air plants are members of the Bromeliad family. Unlike other plants, they do not feed themselves through their roots while sitting in soil. Their roots are merely for anchoring them to a surface, such as a tree or rock. They absorb all their water and nutrients through specialized leaves.


Here is my new tableau: two Air Plants, the tallest with purple blooms,
settled in an Abalone shell with a couple of spiral shells as a background accent.

As I worked on my project, I began to compare how air plants live to what would be the optimum environment for us living with chronic pain/illness. We don’t have physical roots but instead we can choose where to anchor ourselves: into a certain community, with people whom we feel connected to, in a living space which provides for our specific comfort.

We also need an environment that feeds us, not physically, but emotionally and spiritually. The key is to surround ourselves with things that support and nurture us. This could means ridding our lives of negative people who bring us down, doubt us, or drain away our limited energy. It means setting up for success instead of failure, by pacing and not over-extending. Most of all it means embracing who we are, accepting our chronic pain/illness, and acknowledging our limitations - but never allowing them to block us from experiencing life’s joy.

We also need to ensure we set up an atmosphere of motivation which encourages us to continue to grow. We should search for ideas and items which make us aspire to be more than we are. Instead of sitting idly, we should reach beyond ourselves and seek out things to inspire us creatively, and push us to greater achievements than we might ever have dared to dream.

Absorb your environment, like the air plant. Drink it in. Revel in the treasures that surround you, especially those who love and support you through the difficult times, like a rock which the air plant clings to for survival. Breathe in through every pore that which feeds your soul and helps you to grow, develop, and blossom!

Tuesday, August 30, 2011

Tuesday-Newsday #27

Our stories these week come from these subjects: Product Warning, Pain Rx, Patient News, and Rheumatoid Arthritis. The final category is Living with Pain which features a a blog post by Sue Faulker-Wood titled, “The Public You Versus the Private You in a Life of Chronic Pain.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below.

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, meds, etc., in anything I post nor can I guarantee that they are all effective, especially not for everyone. I always include the citation, source, or website so you know where it came from. As is the case with any health info, ALWAYS get your doctor's opinion first!
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*ALERT*: PRODUCT WARNING 

*PAIN Rx

*PATIENT NEWS
*RHEUMATOID ARTHRITIS
*LIVING WITH CHRONIC PAIN
by Sue Falkner-Wood 


Saturday, August 27, 2011

Turning the Kaleidoscope to Set Your Phoenix Free

Back in June, I rediscovered some poems and writings which I wrote years ago when I was in a really dark emotional place. I had finally gotten diagnosed with a chronic degenerative illness, my pain was not being managed, I had become depressed, anorexic, and ultimately suicidal. I was hospitalized more than a few times for my own safety. Through it all, I kept a journal so I could write out my unedited thoughts, free from judgment, and try to work through my jumbled and frightening feelings.

I was struggling with very serious questions: How was I going to live a life of disability and chronic pain? Could I accept what the future might bring? Did I really want to give up on life entirely? I was mired for many months of psychological self-torture as I grappled with how to surrender to the fact my life would never be the same.

During my last hospitalization, my thoughts really began to come into focus - rather like a kaleidoscope. At first, I could see all the bits and pieces of what I knew I needed to do, but I couldn’t see how to fit them all together. My perception kept shifting over and over, but I began to feel like I was getting close to reaching something profound.

Flower Kaleidoscope photo by Michel Kotski

As I read through those old journal pages today, I found it interesting that I wrote a rather desperate and agonized poem right after being admitted to the ward. However, by the next day, I began to organize the scattered, anguished images in the poem and to discern a new set of possibilities for myself. I just had to completely accept my illness and unknown future, and abandon all thoughts of throwing away my life.

These two writings, the poem and the following journal entry, show a progression of logic, hope, and faith. I believe sharing both of them could possibly resonate with someone else who is struggling in the same way, trapped in the identical emotional battle I was. If you are that person, I pray reading them will help you in your struggle. 

Looking back now, it seemed impossible that any future I could have would be worth living. But let me say emphatically, however difficult things get or how much pain I have to endure, there is always joy in life. It is far to precious to squander. Trust me.
How Can I?

How can I rebuild my life
torn down by doubt and pain,
my dearest joys, desires, and hopes
eclipsed by illness' reign?

How can I let go of the past
when loss so raw and deep,
haunts and taunts me with what was,
both waking and asleep?

With rage and fear; guilt, grief, and hurt,
pounding waves stretched out before,
how can I reach the isle of hope
when I cannot see the shore?

The threat of more illness hovers near
how can I risk the chance,
of trying to move forward and
lose yet more independence?

How can I stem the angry tide
of resentment toward myself,
make peace with body, feelings, soul;
accept as worthy this damaged self?

How can I rebuild my life?
I desperately wish to believe
that there is hope, though I see none
and all I can do is grieve.

by Shannon Walker


Journal Entry, the following day:

How can I move on to a new life, without giving the old one its respect, a purposeful closing, a grieving for that forceably taken from my grasp? I think true promise - dare I say, even happiness? - can’t be born out of bitterness and holding on to “the way life was.” How can you move past that if you don’t grieve the losses, cry over your new limitations, lament the blows to your independence, and acknowledge the terror of an uncertain future? 

Denying those feelings, suppressing them, will poison your attempts to move forward from the inside out. It seems to me that an underlying resentfulness, even victimhood, would taint your attitude toward your attempts at a new life. That resentfulness can only be slain with a true and honest grieving, a ritual cremation from which the phoenix of a new, hopeful, promising, and distinctly different life rises from the ashes of the old one.

I can’t even fathom what it will take to do this, or how long, or whether in truth I actually can achieve it. I just know I have to go through it so the phoenix can be born and spread its wings.

The people who tell me I shouldn’t think negative thoughts, or dwell on the past, or that others have it worse than me (and then tell me amazing stories of courage of people struck with illness and disability and how they overcame it) - this is NOT helpful. It invalidates my feelings, makes me feel guilty, and a bad, weak person. Those thoughts will not aid my journey to the phoenix of new life.

The grieving over the old life must run its course in its own time. The feelings are raw, deep, painful. I wish I could speed up the process to escape the overwhelm. But I must deal fully with putting my old life to rest before I can move on.

And yes, I’m sure I’ll have times in my new life - if I get there - when I’ll have painful memories and longings for the old life. But I hope, with my grieving complete, they will be fleeting or of short duration. And the new life, once firmly established, will surely have more exciting and pleasurable distractions of its own.
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To read the other poetry I’ve posted on this blog, click below:




Tuesday, August 23, 2011

Tuesday-Newsday #26

This week’s our subjects are Chronic Pain in Women, Patient News, Cancer, Arthritis, and a Study Seeking Pain Patients in Philly. To finish off, I’m linking to a newsletter by Jan Sadler of PainSupportUK called, “Doing Too Much” about how we often push ourselves too hard and don’t listen to the warnings our bodies give us.

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below.

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, meds, etc., in anything I post nor can I guarantee that they are all effective, especially not for everyone. I always include the citation, source, or website so you know where it came from. As is the case with any health info, ALWAYS get your doctor's opinion first!
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*CHRONIC PAIN in WOMEN
*PATIENT NEWS
*CANCER 
*ARTHRITIS

New Online Arthritis Panel: The Arthritis Foundation is seeking people to join their new panel so you can share what arthritis sufferers want and need, learn what other patients are saying, and to amplify your voice and make a difference. To join, go HERE

*CHRONIC PAIN STUDY SEEKING PATIENTS in PHILADELPHIA

Chronic pain patients are invited to receive a free Integrative pain consultation/evaluation at the Jefferson-Myrna Brind Center of Integrative Medicine. Patients will participate in an assessment designed to help manage pain and to study the effectiveness of an integrative treatment approach. You are eligible if you’ve had *any* type of chronic pain for at least three months. To learn more, call the Center at 215-503-7329. Dr. Daniel A. Monti is the Director of the Center and conducting this study. This info was provided by the RSDSA (Reflex Sympathetic Dystrophy Association) 



*LIVING WITH CHRONIC PAIN
by Jan Sadler of PainSupportUK