Tuesday-Newsday #148

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Be a good girl. Conceal. Don’t feel. Don’t let them know? Why she has to tell”, "How health care providers are gaming the system (of the 340B drug discount program)” and “What to say when you look good but feel bad.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*WARNING - Rx RECALL*

Arthritis Supplement Super Arthgold Recalled Due to Undeclared Drug Ingredients

FDA analysis found it is contaminated with several drugs that could cause adverse reactions, potentially fatal

*MEDICATION NEWS

One third of Americans mixing supplements with meds: study

Pregnant on Opiates: When Following Doctors' Orders Breaks the Law

When pot cures pain, prison still can follow: Even in Washington state, where it's legal, the feds may prosecute

B.C. Pain Society opens Canada’s first marijuana vending machine

Reusable Fireactiv wrap-round pads use your own body-heat to ease joint pain

*CHRONIC PAIN NEWS   

Update on Pain-related bills in state legislatures across U.S.

Type of Chronic Pain May Affect Risk for Suicide

New Research On How Your Gender Affects Your Pain

Pain's Benefit to Squid May Hold Clues to Chronic Human Pain, Scientists Say

Preventing Chronic Post-surgical Pain - Chronic Pain Patients Must Take Extra Precautions

Preventing a Lifetime of Pain after Surgery, Part II

In sickness and in health? Serious illness raises the risk of divorce – but only if the wife gets sick

The Unfinished Science Behind the New Wave of Electrical Brain Stimulation; Harvard says shows promise for treating chronic pain

Sensus pain management device for leg pain now thinner and more comfortable, approved for use during sleep as well

Computer Detects Fake Expressions of Pain Better Than People

Celebrities and Chronic Pain: Famous People Have Pain, Too

Fascial Stretch Therapist: What is it, why you might need one

American Pain Society Establishes Private Pain Research Fund

Pain Med Docs More Prone to Burnout

Pain curbs sex drive in female mice, but not in males

*COMPLEX REGIONAL PAIN SYNDROME (CRPS) / RSD

CRPS: Miracle of modern medicine

CRPS: Diagnosis & Management

THE TASTE & CRPS: The story of a brave Pain Warrior

Resources for Veterans with CRPS

CRPS and the importance of early diagnosis

Tortured by pain doctors simply can't explain? CRPS may be why...

Husband & wife team assume the leadership of RSDSA as Co-Presidents

Paula Abdul: Putting the Spotlight on Rare Disease

Need to speak with someone? Join RSDSA's Peer-to-Peer Program

RSDSA community update newsletter

*RHEUMATOID ARTHRITIS

Survey Seeking Patients: If you’ve been taking Methotrexate or a Biologic for a year you could be eligible to earn $25

Chinese herbal remedy as good as Methotrexate

Extra rituximab dose 'can improve response to RA treatment' 

New study shows benefits of RA drug Sirukumab

Biologics improved RA patients’ physical function after failure of other treatments

Marijuana: Do Risks Outweigh Benefits in RA?

Risk Score Predicts Arthritis Progression

Alcohol Use Lowers RA Risk in Women

New rheumatoid arthritis treatments to come to market soon

RA risk with smoking is dose-dependant

Rheumatoid Arthritis May Harm Kidneys

New RA Management Guidelines: A Quick and Easy Guide

Two New Approaches to Treating Rheumatoid Arthritis

Shoulder Replacement May Help for Severe RA: Study found surgery to relieve pain and stiffness held up for a decade

RA Patients Living a Decade Longer

RA patient referrals delayed by test results

Boy advocates for children with rheumatoid arthritis

Innovative Research Effort Will Learn More About RA

Comorbid Gout, RA Can’t Be Ruled Out, Researchers Say

Where Does RA Start?

Chronotherapy: The science of timing drugs to our Body Clock can help with RA

Video – Project Glove: Spreading Awareness by Sharing the Experience

Actress Kathleen Turner says pilates workouts helped her fight rheumatoid arthritis

*FEATURED BLOG POSTS

Be a good girl. Conceal. Don’t feel. Don’t let them know? Why she has to tell

by Arthritic Chick for Creaky Joints 

March Madness: How health care providers are gaming the system -- Why we need patients to rise and challenge the powerhouse providers abusing the 340B drug discount program

by Policy Wonk Steve for Creaky Joints

What to say when you look good but feel bad (AWAP Wednesday)

by Jenni Prokopy, editrix of Chronic Babe

Tuesday-Newsday #147

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Be a Better Patient: What Your Doctor Recommends When You Visit,” "Diagnosis Dilemmas” and “Helpful Things TO Say to Someone in Chronic Pain.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

FDA re-advises against using extra-strength Acetaminophen

FDA Commissioner: Zohydro Won’t Increase Drug Abuse

New extended-release formulation of Hydrocodone has 24-hour analgesia, less abuse potential

Studies, Reporting Significant Reduction in Chronic Pain Via Non-Opioid Prescription Creams, to be Presented at American Pain Society Conference

Safer Alternatives to Nonsteroidal Antinflamatory (NSAID) Pain Killers

American Pain Society Publishes New Clinical Practice Guideline on Methadone Safety: Mortality Significantly Higher than Other Opioid Medications

Potential for heart attack, stroke risk seen with Marijuana use

*CHRONIC PAIN NEWS   

Pain-relief procedure bill splits state parties in Minnesota

New smart phone apps help doctors manage pain patients

Chronic pain linked to vitamin D deficiency in men

Vitamin D deficiency doubles risk of chronic musculoskeletal pain

Patients' Eye Color a Clue to Pain Tolerance

Treat Car Crash Pain Early On, Lest It Linger

Laughter May Work Like Meditation in the Brain

Neuropathic and psychogenic pain contribute to chronic musculoskeletal pain

Pressure sensors to help prevent pain for amputees

Chronic Pain or an Under-reported Birth Defect?

Pain management training for doctors faces funding issues in Canada

Pain Patients in NHS Scotland wait up to two years for chronic pain treatment

Pain Patients in Canada’s national health system can wait 6 to 12 months for pain care: One man's story

*PATIENT NEWS

Docs' Medicare Pay Made Public: 'You Cannot Call a Plumber for $57'

U.S. Health Care System Has $5.6 Billion Security Problem

Misdiagnosed: Doctors' Mistakes Affect 12 Million a Year

Women Still Left Out of Medical Research: Report

A Doctor's 'People Skills' Affect Patients' Health

Doctors' Free Samples Have a Hidden Cost

Why Your Doctor Might be Wearing Google Glass

*MILITARY VETERANS

VA Medical Care Woes Extend Far Beyond Phoenix Scandal; Congressional Investigation Continues

Senators, Veterans’ Groups, Call For VA Secretary's Resignation Amid Mounting Scandals

U.S. Senate on Veterans’ Affairs examines alternatives to pain drugs for vets

Congress Says “No” To VA Doctors’ Abilities To Recommend Pot To Vets

Navy psychiatrist's acupuncture, meditation methods embraced by special operators

Air Force: Battlefield acupuncture fights pain, skepticism

Acupuncture Helping Reduce Use of Pain Killers in Army Patients

Restoring a Sense of Touch to Amputees, Easing Phantom Limb Pain

For Soldiers With Gulf War Illness, a Clue to the Mystery in Their Cells

Toxic causes of Gulf War illness confirmed: new report

Scientific panel unable to come up with singular definition for Gulf War illness

Top VA official questions use of term 'Gulf War illness': Undersecretary for benefits said name change would be 'limiting'

Clinic helps veteran wounded in Iraq cope with chronic pain

'Why Me?' Vets Face Much Higher Risk of Lou Gehrig's Disease

Inflammation May Be PTSD Risk Factor

Marijuana study in veterans with PTSD wins federal backing

Colorado rejects pot for PTSD

Pig Cells Help Injured Soldiers Recover From Lower Limb Muscle Loss

Veterans of the Burn Pits: Lungs full of toxic fumes follow soldiers home, even as the VA drags its feet

Injuries outside of combat take painful toll on veterans

Three-part PBS documentary that personalizes the experiences of returning veterans and celebrates their lives - starts May 13th

Your military medical files may be at risk

Iraq vet finds the funny in his injury

Caregivers for post-9/11 vets need more help, study finds

"More than 1 million Americans provide care and support for injured or ill Iraq and Afghanistan war-era veterans, and they often do so at great personal sacrifice, facing social isolation, income loss and poor health..."

*FEATURED BLOG POSTS

Be a Better Patient: What Your Doctor Recommends When You Visit

by Dr. William English and Lue English

Diagnosis Dilemmas 

by Jan Sadler of Pain Support UK

Helpful Things TO Say to Someone in Chronic Pain

by Tracy Rydzy

Tuesday-Newsday #146

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Why You MUST Accept Your Chronic Illness”, “How to Stop Feeling Guilty” and “How Chronic Pain and Illness Fan the Flames of Uncertainty.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

Is ibuprofen making us sick? Research suggests it may cause gut conditions such as coeliac disease 

FDA Panel Gives Combo Opioid Moxduo The Thumbs Down

FDA Warns about Epidurals, Requires Label Change

Beyond MS, Cannabis Unproven in Neurology

Researcher: More Medical Marijuana Studies Needed

Discovery may lead to improvements in drugs that act on the sodium channel to treat a range of cardiac and pain conditions

*CHRONIC PAIN NEWS   

Study Seeking Patients: If your partner is in chronic pain, what impact does that have on your relationship?

Pain 'reduces sex drive of women but not men,' study suggests

Genes May Help Determine Your Pain Threshold: Study could explain why some people are more stoic than others, researchers say

Virtual garden helps patients describe chronic pain

Thinking Of A Happy Place Might Help Reduce Pain

Study Finds Massage Improves Blood Flow (Video)

A Close-up Look at Acupuncture for Pain

Custom-made orthotics may help stamp out foot pain

FDA Approves First Upgradeable SCS System

More Contacts, More Relief Says New Spinal Cord Stimulation Research

FDA Clears New Allay Laser for Chronic Heel Pain from Plantar Fasciitis

Two-Time APS Clinical Center of Excellence Takes ‘Whole Patient’ Approach To Treating Pain

ESCAPE Trial Finds Nurse-Led Pain Therapy Beneficial

Inventor of Calmare Scrambler Tries to Block Sales

Can treatment over the Internet help chronic pain?

Woman with chronic pain & illnesses says Obamacare left her without doctors and medication

FDA chides Indiana pain management doc for unapproved human experiments

*PEDIATRIC PAIN

Less pain meds and anesthetic given to kids is a problem, says pain specialist

Codeine often prescribed to children, despite available alternatives

Pre-Surgical Drug May Ease Recovery and Reduce Pain for Kids

Families seeking medical marijuana to treat children’s seizures are being cautioned by CO state’s public health chief

Common Tests May Miss Pediatric Diabetic Neuropathy

Eastern Approach Helps Western Kids Cope With Pain Management At Children’s Hospital

Sedative Dosing of Propofol for Treatment of Migraine Headache in the Emergency Department

Headache: How do treatments for children differ?

Topamax Approval for Migraines Expanded to Younger Users

Caution Urged With Topamax Despite Approval for Adolescent  Treatment

Interview with the Creator Pain Squad, a smartphone-based electronic pain management tool for sick children which helps them keep a pain journal & communicate with their health team

Pain Bytes website helps children with chronic pain share stories, learn strategies for pain management

Adolescents with psychiatric problems more likely to suffer chronic pain

Making music videos 'helps young cancer patients cope'

Mindfulness-based meditation helps teenagers with cancer: Controlled clinical trial intervention on mood, sleep and quality of life reveals impact

Risks to Bone Health in Treating Chronic Disease in Younger Patients

Children with IBS have higher prevalence of celiac disease

Boy to Congress: Children get arthritis, too

*FEATURED BLOG POSTS

AWAP Wednesday: Why You MUST Accept Your Chronic Illness

by Jenni Prokopy, editrix of Chronic Babe

How to Stop Feeling Guilty

by Helena at Chronic Marriage: Helping Couples with Chronic Illness Build Extraordinary Marriages

How Chronic Pain and Illness Fan the Flames of Uncertainty

by Toni Bernhard

Zohydro Update

Judge Overturns Massachusetts Ban on New Opioid Painkiller Zohydro: 

"(However) even with FDA approval, getting Zohydro won’t be easy for pain patients because of restrictions placed on (it) by many pharmacies."

Note from me: I will be taking an Easter break this week, so there will not be a Tuesday-Newsday until April 29th. Sending you wishes for a pain-free week!

~Shannon

Tuesday-Newsday #145

Time for Tuesday-Newsday! The Featured Blog Posts this week are “How I deal with my hidden pain, every day”, “To Disclose or Not to Disclose? Working with Chronic Pain” and “What I did today to help make living with ‘invisible’ illness more visible. And: What you can do, too.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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National Prescription Drug Take-Back Day

April 26, 2014 from 10AM to 2PM

This event provides a safe, convenient, and responsible means of disposing of your unwanted, unused, or expired prescriptions. All medications that your family and pets use should be properly disposed of for three reasons:

          ~ to prevent prescription drugs from being abused

          ~ to protect the environment 

          ~ to reduce the potential for accidental poisonings

Find the collection site nearest you by going HERE.

*MEDICATION NEWS

Student's death in Colorado raises questions on pot and health

Use of NSAIDs Tied to Higher Risk of Irregular Heartbeat in Older Adults, Study Finds

Taking Blood Thinners With Certain Painkillers May Raise Bleeding Risk

Federal Judge Asked to Lift Ban on Zohydro

Let's Get The Zohydro Facts Straight

Opinion: Don't buy all the Zohydro hysteria, one doctor says

PatientsLikeMe Gives Genentech Full Access

The most extensive collaboration between the patient social network and a drug company to-date is likely to be just the first of its kind.

The High Cost of Rare Disease Drugs

*ARTHRITIS - ALL TYPES

Research shows how breastfeeding can help ease the pain of arthritis

Study Finds Link Between Weather, Joint Pain

Women report more pain than men after knee replacement surgery

Laughter Yoga Can Ease Arthritis Pain: Try this unique, effective approach to pain relief

Shoes shouldn’t hurt! Find out which styles can help ease your arthritis foot pain

Young arthritis sufferers choose treatments that 'make life normal'

UK arthritis treatment waiting times 'unacceptable'

Crohn’s Disease, Psoriasis, Arthritis Treatments May Be Aided Through New Molecular Pathway Discovery

Smoking Tied to Worse Lupus, Rheumatoid Arthritis

Two new studies examine the changing trends in age at knee replacement surgery and causes for revision surgeries

*OSTEOARTHRITIS

A glass of milk a day 'keeps knee arthritis at bay' - but only if you are a woman

Knee Pain May Not Be Helped by Glucosamine

Methotrexate Decreases Pain, Improves Function in Knee OA

FDA Approves Monovisc Single-Injection Treatment for Knee OA Pain

The Responsiveness to Treatment of the Neuropathic Components of Knee Osteoarthritis

The adult offspring of parents addicted to drugs or alcohol at greater risk for arthritis

Vitamins and Minerals: How Much is Too Much? Taking vitamins or minerals for your arthritis? Although they're good for you, you can have too many

Nighttime finger splints can ease arthritis pain

Weather may truly affect osteoarthritis pain

Hormone Therapy May Improve Joint Implant Success: Researchers say HRT may prevents bone loss around artificial hips and knees for women

*FEATURED BLOG POSTS

How I deal with my hidden pain, every day

by Kasia Redden

To Disclose or Not to Disclose? Working with Chronic Pain

by Katrina Overland

What I did today to help make living with “invisible” illness more visible. And: What you can do, too
by Jenni Prokopy, editrix of Chronic Babe

Tuesday-Newsday #144

Time for Tuesday-Newsday! The Featured Blog Posts this week are “10 Steps For Healing Well With Chronic Illness”, “Living with Chronic Pain and Depression” and “The Power of Endorphins.” 

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

States Revolt Against Controversial New Painkiller Zohydro

Drugmaker sues Massachusettes over Zohydro ban

FDA, HHS Reaffirm Support for Chronic Pain Patients Amid Zohydro Debate

Potential Hydrocodone-Combination Product Rescheduling Sparks Debate

NACDS to House panel: Transparency key to curbing Rx drug diversion

FDA OKs Naloxone Pen for Opioid Overdose

*CHRONIC PAIN NEWS   

Sleep may stop chronic pain sufferers from becoming 'zombies'

The relationship between nutrition and chronic pain

Wait Times for Spinal Cord Stimulation Vary by Specialty

How Dehydration Can Cause Chronic Pain

High Cooking Temperature and Inflammation: Learn why you should be wary of advanced glycation end products

Is laughter the best medicine? Cartoons could help patients cope with their chronic conditions

Laughter as medicine can relieve chronic pain

NOTE: I've written my own piece on Laughter as Medicine on this blog. 

You can read it HERE 

*SICKLE CELL ANEMIA

New tool helps young adults with sickle cell disease in the transition to adult care

Low levels of oxygen, nitric oxide worsen sickle cell disease

Researchers Study Therapy to Relieve Sickle Cell Pain: ReoPro® (Abciximab)

USF Health clinical trials at Tampa General test drugs for sickle cell pain

*MULTIPLE SCLEROSIS

Doctors criticise FDA over Lemtrada rejection: Say Sanofi/Genzyme’s MS drug should have been approved

Drug company plans to resubmit Lemtrada to the FDA for approval in U.S.

Mode of action of new multiple sclerosis drug Dimethyl Fumarate discovered

Medical Marijuana Pills May Ease Some MS Symptoms: Review: Researchers also found some evidence to support use of other alternative therapies

Statins May Slow Multiple Sclerosis

Bacterial toxin potential trigger for multiple sclerosis

Multiple sclerosis linked to contraceptive pill: Risk could be up to 50% higher in women who take it

Teva asks U.S. Supreme Court to stay ruling in MS drug Copaxone case

Blood Sample Might Predict MS Long Before Symptoms Start: Preliminary research suggests potential for earlier diagnosis

Sleep Apnea May Worsen Fatigue in MS Patients

Immune treatment for MS shows promise

Natalizumab treatment in patients with MS associated with JC virus infection

Researchers develop medical tool for multiple sclerosis

Multiple sclerosis patients experience decreased life expectancy

Modest familial risks for multiple sclerosis

Stem Cell Research for MS Kick-Started by Crowdfunding

Woman helps people suffering from MS choose joy

*FEATURED BLOG POSTS

10 Steps For Healing Well With Chronic Illness

by Peter Waite

Living with Chronic Pain and Depression

by Margarita Tartakovsky

The Power of Endorphins 

by Jan Sadler

Tuesday-Newsday #143

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Sensory Overload: Sources and Strategies”, "’Snap Out of It’ Response to Fibromyalgia, Chronic Fatigue Syndrome & Depression” and “How do I redefine my identity with chronic illness?”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

Massachusetts Declares Health Emergency, Bans New Painkiller Zohydro

opinion: Massachusetts Ban on Zohydro a Slippery Slope

Over-regulation of drugs not the right prescription: Poorly designed rules might harm patients in pain

Ask the Pharmacist: Why Am I Being Denied a Pain Medication?

How to file complaints if patient is being denied having a valid/on time control substance prescriptions

Study: Non-Opioid Creams Relieve Pain, Improve Quality of Life in Senior Americans, While Reducing Use of Addicting Medicines 

*PATIENT NEWS

'Talking' Medical Devices, Apps Continue to Evolve: Innovations can help people manage their conditions, function in emergencies, keep doctors informed

How to Avoid the Two Words that Cost Thousands in Medicare Bills

Cognitive behavioral therapy (CBT) for insomnia could save money and ease symptoms, several studies suggest

New therapies offer bright hope against the darkness of depression

*FIBROMYALGIA

Take the National Fibromyalgia & Chronic Pain Assoc. Survey

National Fibromyalgia Awareness Day is May 12, 2014

FDA Hears From Fibromyalgia Patients

Survey of Symptoms Other than Pain for FDA Meeting Part 1

Survey of Pain and Fibromaylgia patients in 10 countries show high unmet need globally due to low diagnosis and low treatment satisfaction

Fibromyalgia: The Stigma and the Truth

Fibromyalgia: New Criteria Improve Diagnosis

Fibromyalgia Now Widely Recognized as Requiring Multimodal Approach

Drugs for Fibromyalgia: How Good Are They?

Fibromyalgia pain and fatigue reduced by vitamin D 

Electrical Brain Stimulation Might Help Fibromyalgia Patients

Men with fibromyalgia experienced greater sleep respiratory disorders than women

Most Teens With Fibromyalgia Suffer Pain, Fatigue as Adults

Marijuana-Cannabis & Fibromyalgia Survey

Cold Weather Hits Fibromyalgia Sufferers Hard

Exercise Tips for People with FM

The Straight Neck in Fibromyalgia

Massage Therapy Studies for Fibromyalgia Reviewed

Fibromyalgia Impact on Relationships

A Step Toward Identifying Fibromyalgia Subgroups

Big Antiviral Trial Could Usher in New Treatment Era for Fibromyalgia

Fibromyalgia sufferer takes on her chronic pain by training to swim the English Channel

*CHRONIC FATIGUE SYNDROME / M.E.

Bay Area pharmaceutical company develops treatment for chronic fatigue syndrome

FDA Says Sponsors of Chronic Fatigue Syndrome Drugs can Rely on Patient-Reported Outcomes

Doctors, drugs slowly coming around to chronic fatigue

British Doctor Wants to Rescue M.E. Patient Held at Danish Hospital 

Does Chronic Fatigue Syndrome Need A New Name?

Study: CFS Linked to Latent EBV Replication; polyDNA Recommends Gene-Eden-VIR Against Latent Epstein Barr Virus and Resulting Fatigue

Film: “Mom Needs to Lie Down” shares the experiences of ME/CFS three patients

*FEATURED BLOG POSTS

Sensory Overload: Sources and Strategies

by Bruce Campbell

"Snap Out of It" Response to Fibromyalgia, Chronic Fatigue Syndrome & Depression

by Adrienne Dellwo

AWAP: How do I redefine my identity with chronic illness?

by Jenni Prokopy, editrix of Chronic Babe