dahlia in my garden: Rio Fuego in Coleus leaves

Saturday, July 9, 2011

Letting Truth, not Fear, Guide Your Perspective

This post is not so much about living with chronic pain as it is about dealing with the unhealthy ways some of us use to try to cope. It’s also about recognizing what you’re doing and facing it head on...

As I’ve mentioned in a few previous blog posts, dealing with my chronic pain lead to depression and ultimately to several years of anorexia. It took intense therapy and incredible force of will to finally recover. However, I am always worried that my eating disorder thinking will sneak back in. So, to this day I prefer not to know what my actual weight is, lest it trigger a relapse. When I must be weighed, I always turn my back to the scale and ask not to be told what the number is.

Last week as I was leaving a doctor’s appointment, the physician’s assistant gave me a sheet of paper as a record of my visit. There it was... my weight was listed. 

"There are seeds of self-destruction in all of us 
that will bear only unhappiness if allowed to grow." 
~Dorothea Brande 

At first, I wasn’t quite sure what I felt when I saw the number. It took a moment to process. Was it too high? Too low? Right where I should be according to my doctor? Did it make me want to skip dinner and start fretting about being fat?

I was surprised to find that I was actually feeling quite complacent. It wasn’t setting off alarm bells in my head. This wasn’t the big terrifying reveal I was afraid it would be. I continued to think about it, but not in a negative way.

It reminded of one of my poems I rediscovered recently in an old filing cabinet, something I’d written during therapy to help me get past the eating disorder and take a more realistic view of my health.

I’ve often thought that this poem would be incredibly helpful to others, especially some women I see at my gym who get on the scale and obsess very vocally about the numbers. Maybe this poem will speak to you or someone else you know, and help you face a truth you haven’t seen before.

~ Stepping on the Scale  *~

The number you see on the scale
does not show if you’ve won or failed.

Remember it does not reveal
if you ate too much at your last meal.

The digits don’t break down to show
your muscle - fat - bone - water ratio.

It easy to forget, your see,
fat’s lighter than the other three.

If you eat well and exercise
you might be caught by a surprise:

The muscle and bone which you gain
might cause the sum to rise, not wane.

And it would be a good result
not something that is an insult.

Don’t be misled by myths and diets.
Some CAN be harmful if you try it.

And taking weight loss to extreme
can totally destroy your dreams.

You may not see what underneath 
is damaged when you do not eat...

a balanced plan of healthy food
with exercise and positive mood...


Tuesday, July 5, 2011

Tuesday-Newsday #19

Happy 4th of July! A special ‘thank you’ to all those in the military for your service to our country, including two members of my own family who are overseas. Thank you, Mark and Jason!

In my news today are Chronic Pain News, Medication NewsChronic Pain & Military Personnel and Managing Pain when Traveling. I’ve also included information on an RSD/CRPS Study seeking patients

In connection with the 4th of July holiday, I’ve found a great essay called "A Painville Declaration of Independence". It's really worth reading and I'm betting you'll share it with others, too!

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below.

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, meds, etc., in anything I post nor can I guarantee that they are all effective, especially not for everyone. I always include the citation, source, or website so you know where it came from. As is the case with any health info, ALWAYS get your doctor's opinion first!
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*CHRONIC PAIN NEWS







*MEDICATION NEWS





*CHRONIC PAIN & MILITARY PERSONNEL







*RSD / CRPS STUDY SEEKING PATIENTS

McGill University Study Participants needed: Have you been diagnosed with Reflex Sympathetic Dystrophy (RDS) or Algodystrophy now known as Complex Regional Pain Syndrome (CRPS)?
• are you between 18 and 70 years old?
• you do not have any heart problems?
• you are not taking any blood thinners?
• you do not have diagnosed neuropathy? 
If you answered yes to these questions and you are interested in participating in a research study looking at how to improve the understanding and diagnosis of  Complex Regional Pain Syndrome (CRPS) may be eligible for travel grant. Principal investigator: Dr. Terence Coderre. For a further information, please call André Laferrière at (514) 398-2903



*MANAGING PAIN WHEN YOU TRAVEL







Top Tips for Travelling with Fibro - although this article is written specifically for those with Fibromyalgia, the information is definitely useful for those with other chronic conditions



*CHRONIC PAIN & INDEPENDENCE DAY

Saturday, July 2, 2011

Protect Your Life with a Medical Alert I.D.

When I buy plants and repot them into my garden, I always save the nursery tags they come with, particularly if I’ve never grown a similar one before. The tag gives the proper name of the plant and all the basic information on how to care for it properly. If in the future the plant starts to look poorly, I can then check the tag  for clues on what might be causing the problem. It’s like a horticultural medical alert I.D.!

I wear a medical alert bracelet myself. Have you thought about whether you should? Let me tell you about my own reasons and then give you some information to consider...

When I began taking stronger pain medication, I toyed with the idea of getting a medical alert I.D. but never made the effort to follow through. None of my doctors suggested it so I just let it slide, though I knew I probably shouldn’t. I’m a medical television show junkie, not the dramas but the shows which show actual patients and procedures like on the Discovery Fit & Health Channel. From watching such personal accounts, I know that patients may be given strong drugs like morphine in order to keep them still for transport or if they have been badly burned or suffered an agonizing injury. I was concerned that if it happened to me, I could be accidentally overdosed. I also have a couple of drug allergies which could be a problem.

When my birthday rolled around, I received an unusual gift from my mother-in-law. Instead of the usual jewelry or clothing item, she sent me a gift certificate for the MedicAlert Foundation. This is what prompted me to finally make the decision to sign up. After discussing it with my doctor, I had the alert bracelet engraved with the information we felt was most important. When I received it, I put it on and it has been on my left wrist ever since.

Here is my medical alert I.D. - I'm holding my wrist in front
of a vase of Dahlias and Dianthus in my living room.

MedicAlert is one of a number of companies that provides 24/7 service for members, so that if you have an emergency the paramedics can call a number and get your medical information and contact numbers so you get the proper care, your doctor is consulted, and your family notified. I cannot personally speak to how good the other alert companies are, but I've heard positive reviews from friends who are members of:

However, you may not need a medical alert I.D. with 24 hour service. Maybe you just want one that says “Diabetic” or “Peanut Allergy” or “Pacemaker” with your name, number, and a personal contact. Medical alert I.D.’s can say as much as little as you and your doctor feel is necessary to keep you safe in an emergency. 


~* WHY ARE MEDICAL I.D.’s IMPORTANT? *~

• In an emergency, when you might not be able to speak for yourself, a medical alert I.D. speaks for you. It will protect you from treatment that might cause you harm.

• Symptoms of common ailments can easily be misdiagnosed. A brief description of vital medical facts engraved on your medical alert I.D. ensures appropriate and timely medical care.

• According to a published study, half of all medical errors occur because of mistakes made upon admission or discharge from the hospital. Wearing a medical alert I.D. protects against potentially harmful medical errors.

• Medical alert I.D.'s can eliminate trips to the hospital, reduce unnecessary hospital admissions and prevent minor emergencies from becoming major ones. 


~* WHO SHOULD WEAR A MEDICAL ALERT I.D.? *~

~Those who have food, drug, or insect allergies, or sensitivity to items which could affect emergency medical treatment like being allergic to latex or contrast dye.

~Those with a chronic medical condition, for example: diabetes, epilepsy, asthma, heart disease, organ transplant, COPD, hemophilia, rare diseases, etc. Or a condition that might make it hard to communicate such as hearing impairment, autism, Alzheimers, Tourettes, etc.

~Those with an implant of any kind: cochlear implants, pacemaker, insulin pump, implanted stimulator, etc.

~Those taking medications such as opiates, blood-thinners, insulin, anti-rejection drugs, heart meds, psychiatric drugs, and many more. Ask your doctor if the drug(s) you take should be listed on a medical alert I.D.

~Those with any other issue that could affect emergency treatment. Talk with your doctor to determine if this includes you.


~* WHAT KIND OF MEDICAL I.D.'s ARE AVAILABLE? *~

You are no longer limited to a plain bracelet. There are all kinds of I.D.'s and all kinds of designs available from simple to sophisticated. Each company offers their own lines including bracelets, necklaces, sport I.D. bands, dog tags, shoe tags, and more. You can even get a USB memory stick or flash drive to wear and put your entire medical record on it.

However, there are a few important things to consider when you are choosing a piece of jewelry which is meant to guard your life. Diabetes educator Hope Warshaw suggests that you ask yourself five questions:
1.  Do I like it enough to wear it all day, every day?

2.  Will it be physically comfortable to wear?

3.  Is it durable enough for my lifestyle and activities?

4.  Is it large enough to hold key information: my name, medical condition, and reliable phone numbers for one or more contacts?

5.  Is it easy to locate on my body?


~* COULD A MEDICAL ALERT I.D. REALLY SAVE YOUR LIFE? *~

Medical alert I.D.'s save lives every day. Here are a few personal stories to show how an I.D. made all the difference:






One day, you may be in a life-threatening situation where a medical alert I.D. could save your life. Will *you* be wearing one? 

Tuesday, June 28, 2011

Tuesday-Newsday #18

In my news today are Warnings & Recalls, Drug News, Announcements, and Migraine/Headache. The final item is a link to a PainSupport newsletter with tips on how to get a Good Night’s Sleep by Jan Sadler.

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below.

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, meds, etc., in anything I post nor can I guarantee that they are all effective, especially not for everyone. I always include the citation, source, or website so you know where it came from. As is the case with any health info, ALWAYS get your doctor's opinion first!
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*WARNINGS & RECALLS
*DRUG NEWS
This law makes me very nervous. You need to read this article even if you live in another state... it could be coming your way.
*ANNOUNCEMENTS
Lyme Disease: Online Chat this Friday with 2 experts
This Friday, July 1st at noon EST (11 am CST, 10 am MST, 9 am PST) 
Join doctors Dr. Lawrence Zemel and Dr. Daniel Cameron for a chat about Lyme disease, including the controversial issue of whether patients should be treated with long-term antibiotics for chronic Lyme disease. Find all details HERE
Movie Review: Romance and Chronic Illness in "Love Simple"
*MIGRAINE / HEADACHE
*PAIN & SLEEP
A Good Night's Sleep by Jan Sadler of PainSupport.co.uk


Just for Fun: Here's what I have in my living room today...
one Dahlia & three large striped Dianthus.