Tuesday-Newsday #146

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Why You MUST Accept Your Chronic Illness”, “How to Stop Feeling Guilty” and “How Chronic Pain and Illness Fan the Flames of Uncertainty.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

Is ibuprofen making us sick? Research suggests it may cause gut conditions such as coeliac disease 

FDA Panel Gives Combo Opioid Moxduo The Thumbs Down

FDA Warns about Epidurals, Requires Label Change

Beyond MS, Cannabis Unproven in Neurology

Researcher: More Medical Marijuana Studies Needed

Discovery may lead to improvements in drugs that act on the sodium channel to treat a range of cardiac and pain conditions

*CHRONIC PAIN NEWS   

Study Seeking Patients: If your partner is in chronic pain, what impact does that have on your relationship?

Pain 'reduces sex drive of women but not men,' study suggests

Genes May Help Determine Your Pain Threshold: Study could explain why some people are more stoic than others, researchers say

Virtual garden helps patients describe chronic pain

Thinking Of A Happy Place Might Help Reduce Pain

Study Finds Massage Improves Blood Flow (Video)

A Close-up Look at Acupuncture for Pain

Custom-made orthotics may help stamp out foot pain

FDA Approves First Upgradeable SCS System

More Contacts, More Relief Says New Spinal Cord Stimulation Research

FDA Clears New Allay Laser for Chronic Heel Pain from Plantar Fasciitis

Two-Time APS Clinical Center of Excellence Takes ‘Whole Patient’ Approach To Treating Pain

ESCAPE Trial Finds Nurse-Led Pain Therapy Beneficial

Inventor of Calmare Scrambler Tries to Block Sales

Can treatment over the Internet help chronic pain?

Woman with chronic pain & illnesses says Obamacare left her without doctors and medication

FDA chides Indiana pain management doc for unapproved human experiments

*PEDIATRIC PAIN

Less pain meds and anesthetic given to kids is a problem, says pain specialist

Codeine often prescribed to children, despite available alternatives

Pre-Surgical Drug May Ease Recovery and Reduce Pain for Kids

Families seeking medical marijuana to treat children’s seizures are being cautioned by CO state’s public health chief

Common Tests May Miss Pediatric Diabetic Neuropathy

Eastern Approach Helps Western Kids Cope With Pain Management At Children’s Hospital

Sedative Dosing of Propofol for Treatment of Migraine Headache in the Emergency Department

Headache: How do treatments for children differ?

Topamax Approval for Migraines Expanded to Younger Users

Caution Urged With Topamax Despite Approval for Adolescent  Treatment

Interview with the Creator Pain Squad, a smartphone-based electronic pain management tool for sick children which helps them keep a pain journal & communicate with their health team

Pain Bytes website helps children with chronic pain share stories, learn strategies for pain management

Adolescents with psychiatric problems more likely to suffer chronic pain

Making music videos 'helps young cancer patients cope'

Mindfulness-based meditation helps teenagers with cancer: Controlled clinical trial intervention on mood, sleep and quality of life reveals impact

Risks to Bone Health in Treating Chronic Disease in Younger Patients

Children with IBS have higher prevalence of celiac disease

Boy to Congress: Children get arthritis, too

*FEATURED BLOG POSTS

AWAP Wednesday: Why You MUST Accept Your Chronic Illness

by Jenni Prokopy, editrix of Chronic Babe

How to Stop Feeling Guilty

by Helena at Chronic Marriage: Helping Couples with Chronic Illness Build Extraordinary Marriages

How Chronic Pain and Illness Fan the Flames of Uncertainty

by Toni Bernhard

Zohydro Update

Judge Overturns Massachusetts Ban on New Opioid Painkiller Zohydro: 

"(However) even with FDA approval, getting Zohydro won’t be easy for pain patients because of restrictions placed on (it) by many pharmacies."

Note from me: I will be taking an Easter break this week, so there will not be a Tuesday-Newsday until April 29th. Sending you wishes for a pain-free week!

~Shannon

Tuesday-Newsday #145

Time for Tuesday-Newsday! The Featured Blog Posts this week are “How I deal with my hidden pain, every day”, “To Disclose or Not to Disclose? Working with Chronic Pain” and “What I did today to help make living with ‘invisible’ illness more visible. And: What you can do, too.”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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National Prescription Drug Take-Back Day

April 26, 2014 from 10AM to 2PM

This event provides a safe, convenient, and responsible means of disposing of your unwanted, unused, or expired prescriptions. All medications that your family and pets use should be properly disposed of for three reasons:

          ~ to prevent prescription drugs from being abused

          ~ to protect the environment 

          ~ to reduce the potential for accidental poisonings

Find the collection site nearest you by going HERE.

*MEDICATION NEWS

Student's death in Colorado raises questions on pot and health

Use of NSAIDs Tied to Higher Risk of Irregular Heartbeat in Older Adults, Study Finds

Taking Blood Thinners With Certain Painkillers May Raise Bleeding Risk

Federal Judge Asked to Lift Ban on Zohydro

Let's Get The Zohydro Facts Straight

Opinion: Don't buy all the Zohydro hysteria, one doctor says

PatientsLikeMe Gives Genentech Full Access

The most extensive collaboration between the patient social network and a drug company to-date is likely to be just the first of its kind.

The High Cost of Rare Disease Drugs

*ARTHRITIS - ALL TYPES

Research shows how breastfeeding can help ease the pain of arthritis

Study Finds Link Between Weather, Joint Pain

Women report more pain than men after knee replacement surgery

Laughter Yoga Can Ease Arthritis Pain: Try this unique, effective approach to pain relief

Shoes shouldn’t hurt! Find out which styles can help ease your arthritis foot pain

Young arthritis sufferers choose treatments that 'make life normal'

UK arthritis treatment waiting times 'unacceptable'

Crohn’s Disease, Psoriasis, Arthritis Treatments May Be Aided Through New Molecular Pathway Discovery

Smoking Tied to Worse Lupus, Rheumatoid Arthritis

Two new studies examine the changing trends in age at knee replacement surgery and causes for revision surgeries

*OSTEOARTHRITIS

A glass of milk a day 'keeps knee arthritis at bay' - but only if you are a woman

Knee Pain May Not Be Helped by Glucosamine

Methotrexate Decreases Pain, Improves Function in Knee OA

FDA Approves Monovisc Single-Injection Treatment for Knee OA Pain

The Responsiveness to Treatment of the Neuropathic Components of Knee Osteoarthritis

The adult offspring of parents addicted to drugs or alcohol at greater risk for arthritis

Vitamins and Minerals: How Much is Too Much? Taking vitamins or minerals for your arthritis? Although they're good for you, you can have too many

Nighttime finger splints can ease arthritis pain

Weather may truly affect osteoarthritis pain

Hormone Therapy May Improve Joint Implant Success: Researchers say HRT may prevents bone loss around artificial hips and knees for women

*FEATURED BLOG POSTS

How I deal with my hidden pain, every day

by Kasia Redden

To Disclose or Not to Disclose? Working with Chronic Pain

by Katrina Overland

What I did today to help make living with “invisible” illness more visible. And: What you can do, too
by Jenni Prokopy, editrix of Chronic Babe

Tuesday-Newsday #144

Time for Tuesday-Newsday! The Featured Blog Posts this week are “10 Steps For Healing Well With Chronic Illness”, “Living with Chronic Pain and Depression” and “The Power of Endorphins.” 

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

States Revolt Against Controversial New Painkiller Zohydro

Drugmaker sues Massachusettes over Zohydro ban

FDA, HHS Reaffirm Support for Chronic Pain Patients Amid Zohydro Debate

Potential Hydrocodone-Combination Product Rescheduling Sparks Debate

NACDS to House panel: Transparency key to curbing Rx drug diversion

FDA OKs Naloxone Pen for Opioid Overdose

*CHRONIC PAIN NEWS   

Sleep may stop chronic pain sufferers from becoming 'zombies'

The relationship between nutrition and chronic pain

Wait Times for Spinal Cord Stimulation Vary by Specialty

How Dehydration Can Cause Chronic Pain

High Cooking Temperature and Inflammation: Learn why you should be wary of advanced glycation end products

Is laughter the best medicine? Cartoons could help patients cope with their chronic conditions

Laughter as medicine can relieve chronic pain

NOTE: I've written my own piece on Laughter as Medicine on this blog. 

You can read it HERE 

*SICKLE CELL ANEMIA

New tool helps young adults with sickle cell disease in the transition to adult care

Low levels of oxygen, nitric oxide worsen sickle cell disease

Researchers Study Therapy to Relieve Sickle Cell Pain: ReoPro® (Abciximab)

USF Health clinical trials at Tampa General test drugs for sickle cell pain

*MULTIPLE SCLEROSIS

Doctors criticise FDA over Lemtrada rejection: Say Sanofi/Genzyme’s MS drug should have been approved

Drug company plans to resubmit Lemtrada to the FDA for approval in U.S.

Mode of action of new multiple sclerosis drug Dimethyl Fumarate discovered

Medical Marijuana Pills May Ease Some MS Symptoms: Review: Researchers also found some evidence to support use of other alternative therapies

Statins May Slow Multiple Sclerosis

Bacterial toxin potential trigger for multiple sclerosis

Multiple sclerosis linked to contraceptive pill: Risk could be up to 50% higher in women who take it

Teva asks U.S. Supreme Court to stay ruling in MS drug Copaxone case

Blood Sample Might Predict MS Long Before Symptoms Start: Preliminary research suggests potential for earlier diagnosis

Sleep Apnea May Worsen Fatigue in MS Patients

Immune treatment for MS shows promise

Natalizumab treatment in patients with MS associated with JC virus infection

Researchers develop medical tool for multiple sclerosis

Multiple sclerosis patients experience decreased life expectancy

Modest familial risks for multiple sclerosis

Stem Cell Research for MS Kick-Started by Crowdfunding

Woman helps people suffering from MS choose joy

*FEATURED BLOG POSTS

10 Steps For Healing Well With Chronic Illness

by Peter Waite

Living with Chronic Pain and Depression

by Margarita Tartakovsky

The Power of Endorphins 

by Jan Sadler

Tuesday-Newsday #143

Time for Tuesday-Newsday! The Featured Blog Posts this week are “Sensory Overload: Sources and Strategies”, "’Snap Out of It’ Response to Fibromyalgia, Chronic Fatigue Syndrome & Depression” and “How do I redefine my identity with chronic illness?”

Let Me Know: If you’d like me to watch for articles on your pain condition, just drop me a note in the comments section below. 

WARNING:  My goal is to provide the most up-to-date news I can, which you can then take to your personal doctor and debate the merits of before you try it. I do not endorse any of the docs, treatments, info, and meds in anything I post nor can I guarantee they are all effective, especially not for everyone. As is the case with any health info, ALWAYS get your doctor's opinion first!

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*MEDICATION NEWS

Massachusetts Declares Health Emergency, Bans New Painkiller Zohydro

opinion: Massachusetts Ban on Zohydro a Slippery Slope

Over-regulation of drugs not the right prescription: Poorly designed rules might harm patients in pain

Ask the Pharmacist: Why Am I Being Denied a Pain Medication?

How to file complaints if patient is being denied having a valid/on time control substance prescriptions

Study: Non-Opioid Creams Relieve Pain, Improve Quality of Life in Senior Americans, While Reducing Use of Addicting Medicines 

*PATIENT NEWS

'Talking' Medical Devices, Apps Continue to Evolve: Innovations can help people manage their conditions, function in emergencies, keep doctors informed

How to Avoid the Two Words that Cost Thousands in Medicare Bills

Cognitive behavioral therapy (CBT) for insomnia could save money and ease symptoms, several studies suggest

New therapies offer bright hope against the darkness of depression

*FIBROMYALGIA

Take the National Fibromyalgia & Chronic Pain Assoc. Survey

National Fibromyalgia Awareness Day is May 12, 2014

FDA Hears From Fibromyalgia Patients

Survey of Symptoms Other than Pain for FDA Meeting Part 1

Survey of Pain and Fibromaylgia patients in 10 countries show high unmet need globally due to low diagnosis and low treatment satisfaction

Fibromyalgia: The Stigma and the Truth

Fibromyalgia: New Criteria Improve Diagnosis

Fibromyalgia Now Widely Recognized as Requiring Multimodal Approach

Drugs for Fibromyalgia: How Good Are They?

Fibromyalgia pain and fatigue reduced by vitamin D 

Electrical Brain Stimulation Might Help Fibromyalgia Patients

Men with fibromyalgia experienced greater sleep respiratory disorders than women

Most Teens With Fibromyalgia Suffer Pain, Fatigue as Adults

Marijuana-Cannabis & Fibromyalgia Survey

Cold Weather Hits Fibromyalgia Sufferers Hard

Exercise Tips for People with FM

The Straight Neck in Fibromyalgia

Massage Therapy Studies for Fibromyalgia Reviewed

Fibromyalgia Impact on Relationships

A Step Toward Identifying Fibromyalgia Subgroups

Big Antiviral Trial Could Usher in New Treatment Era for Fibromyalgia

Fibromyalgia sufferer takes on her chronic pain by training to swim the English Channel

*CHRONIC FATIGUE SYNDROME / M.E.

Bay Area pharmaceutical company develops treatment for chronic fatigue syndrome

FDA Says Sponsors of Chronic Fatigue Syndrome Drugs can Rely on Patient-Reported Outcomes

Doctors, drugs slowly coming around to chronic fatigue

British Doctor Wants to Rescue M.E. Patient Held at Danish Hospital 

Does Chronic Fatigue Syndrome Need A New Name?

Study: CFS Linked to Latent EBV Replication; polyDNA Recommends Gene-Eden-VIR Against Latent Epstein Barr Virus and Resulting Fatigue

Film: “Mom Needs to Lie Down” shares the experiences of ME/CFS three patients

*FEATURED BLOG POSTS

Sensory Overload: Sources and Strategies

by Bruce Campbell

"Snap Out of It" Response to Fibromyalgia, Chronic Fatigue Syndrome & Depression

by Adrienne Dellwo

AWAP: How do I redefine my identity with chronic illness?

by Jenni Prokopy, editrix of Chronic Babe